Thankful to be Home

We got home yesterday and we are so glad to be home. Cameron is doing good and was excited to be playing with his toys and looking at books. 

Good News! So Thankful!

Cameron's x-ray this morning looked a lot better.  The extra oral diuretics over night did a good job getting rid of a lot of the extra fluid around the lungs. It was decided to continue with the oral diuretics and that he would not have to get a central line put in.  We were so happy that he didn't need the line or need to be put asleep.  He had an echo and the echo showed his heart was functions were about the same as the last echo, which is good.  By afternoon he was doing so much better.  He started eating by mouth for me today after refusing to eat for over a week.  All that extra fluid in his body was keeping him from wanting to eat. We are so happy he drank from his sippy cup and ate baby food.  He was happy too!  

Cameron will get another x-ray done in the morning and depending on how things go, we hope to go home tomorrow.  We will see,  God has a plan and all in his time.  My mom was with us today and yesterday and Jordan came for a visit tonight.  We were so glad to see him.  Cameron cried when he got here because Jordan couldn't hold him fast enough.  He wanting Jordan right when he saw him.  As you can see he snuggled with Jordan and gave him lots of kisses! 

In the Hospital

Cameron had been doing good and was able to get his feeding tube replaced last Tuesday.  The procedure went really good and was a lot simpler than we thought it would be.  Since that he hasn't wanted to eat anything by mouth.  I'm not sure why, but he is getting lots of new teeth now and plus has been fighting a cold still.

Today we had a scheduled apt in Cleveland with cardiology, but yesterday he started getting really puffy eyes all of a sudden.  This morning his one eye was so puffy it was almost shut.  I was pretty sure we would have to stay in the hospital so i packed clothes.  

Cameron got an x-ray and labs when we got here today. The x-ray showed that he has a lot of extra fluid around the lungs and that alone was enough to keep him in the hospital.  He needs IV diuretics to get rid of all that fluid, but after many many pokes he still has no IVs.  We got moved to PICU and the plan is to put him under tomorrow and put in a central line.  While he is asleep they plan on doing an echo and depending on how things look and how he is doing, they might put in a chest tube to get rid of the fluid faster.  We are not sure yet when the procedure will be tomorrow.  

Thanks for your prayers.