Slow Progress

On Monday, Cameron gave me a scare. The respiratory therapist was suctioning his breathing tube out and he got really upset. He ended up holding his breath, turning purple and then passing out. He was fine, just really scared his mom. My mom came later in the day and stayed in Cleveland with us. On Tuesday morning, they thought Cameron was ready to get the breathing tube out. When they tried he lasted about 2 minutes and stopped breathing. They had to do compressions on him and give him several doses of epi before having to put the breathing tube back in. Everyone was so disappointed that Cameron had to get the tube right back in. After this episode, he was the most awake I had seen him since surgery. He was content and looking around and looked like he wanted to smile at us. Josie and Adelynn came to visit and then Josie spent more time with me and my mom took Adelynn home. They did a echo and ultrasound to make sure that everything looked okay with his heart and also to make sure his diaphragm was working. The ultrasound showed that the diaphragm was good, but the echo showed that the heart's right ventricle's function was not as good as it was before the surgery. They are thinking that it was caused from the compressions and problems he had that morning. Last night my mom came back and I spent the night in Cameron's room because they were going to get him off some sedation in case they decided to try to take the tube out in the morning. I wanted to stay close because Cameron calms down for me. Right now the plan is to let him relax and grow stronger the next couple days. They started him on a slow continues feed today, also On Friday, they plan on doing another echo and seeing how his heart looks. Depending on the echo the hope to get the breathing tube out Friday or sometime this weekend. Cameron is having a good day today, he now has both the chest tubes out and his incision seems to be healing well.

God's Time

Cameron has had some ups and downs since surgery on Friday. On Saturday, Cameron needed a blood infusion. He was pretty swollen in his face and some all over his body, but nothing like the first surgery. In the afternoon, he got the breathing tube out and was doing pretty good. He was breathing pretty hard, but they hoped that would get better with sometime. Cameron was doing good when Jordan left for the night, but we knew it was possible the breathing tube would need to go back in. At 4am on Sunday morning, Cameron spiked a fever and his oxygen saturation dropped. He was having a really hard time breathing, so he had to get the breathing tube back in. They got blood cultures to check to make sure there was no infections. They hoped he got a fever just from surgery and being bundled too much. Even though he had to get the breathing tube in, he seemed to be doing good on Sunday. His swelling had gone down a lot and he looks more like himself. They wanted to let him get all rested up to take the tube out in a day or so. He has been kept mostly sedated so he wont be uncomfortable. Today Cameron's x-ray showed fluid in his chest that his one chest tube hasn't gotten out yet. They put a smaller chest tube in to try to get the fluid out. So far the blood cultures are negative for an infection. Right now Cameron is getting more blood since his blood levels are a little low. One thing after the other, but overall Cameron is doing pretty good. The doctors are hoping to try to get the breathing tube out later today or tomorrow.

I just need to keep reminding myself that God has a special plan and all in His time. We are so ready to take Cameron home, but only God knows when it will be the right time.

Praise God

Cameron's surgery went really good today. We are very thankful. The doctors are very happy with how it went and how Cameron is doing. They are hoping to try to take the breathing tube out tonight or tomorrow, most likely tomorrow. We hope and pray he can get it out soon and it can stay out.

Thanks for your prayers!

God Knows Best!

Cameron has been doing really good. He has been full of smiles and he likes to talk to us. The plan is to move forward with surgery tomorrow. The doctors hope to start the surgery between 8-10:30am. Most likely the surgery will take most of the day. We are hoping and praying all goes well and Cameron has a quick recovery. They said normally it take 2 weeks, sometimes less for recovery after this surgery. Most of all we are praying that God's Will will be done, He knows best.

Thanks so much for your prayers!

Thankful!

Cameron's blood cultures and other tests all came back negative. We are so thankful that he is getting over the flu and blood infection. Cameron should be able to have his surgery still on the 30th as long as he continues to do good this next week. He is still in oxygen, but will probably need it until his surgery. Cameron is gaining weight and is now over 11 pounds. The more he gains between now and the surgery the better.

Surgery Nov. 30th

For the past ten days, we have been fighting the influenza and trying to all get better. I'm feeling a lot better, but not 100% yet. Cameron was doing a lot better and then yesterday he had a fever and his nose was more stuffy again. They did some blood cultures and tests to make sure no more problems have developed. We are waiting for those results back and we are hoping and praying everything looks good. Today he seems to be feeling a lot better and I hope to try to bottle feed him today for the first time since we have been back in hospital. On Monday, Cameron's broviack line for his antibiotics stopped working. They did an x-ray and discovered that the line was no longer in the right spot. Cameron still needs one antibiotic until the surgery, so on Tuesday he went to the cath lab to get the old line removed and put a new line is his groin/leg. I was really nervous about it because it seems like every time he goes to the cath lab something bad happens. The procedure went really good and he was able to get the breathing tube out while he was still in the cath lab. Cameron is slowly gaining more weight. He also started cooing and talking a lot more this week. On Monday, Cameron got a new cousin. My brother Jacob and sister-in-law Beth had a baby girl, Melea Rose. She was born on Jordan's birthday and they took her home yesterday.

Cameron's second surgery has been scheduled for November 30th. We are hoping that the flu is all cleared up by then, so the surgery doesn't have to be postponed. As long as the surgery is the 30th and the surgery goes good, the doctors are hoping to get us home for Christmas.

Sick Again

Cameron was moved to the rehab hospital on Thursday, but we were only there a couple days. When I got to Cameron's room Saturday morning, he was on oxygen because he oxygen level was low. He was stuffed up and coughing. A PICU doctor that knows Cameron was there to see what was going on with him. Soon it was decided we needed to get transported back to the main hospital. When at the main, they swabbed his nose and soon found out he had the worst influenza. We were told that it will probably get worse before it gets better and that sometimes this flu takes a long time to get over.

Yesterday Cameron had a pretty good day, but has been pretty miserable today. He has been more stuffed up and has needed a lot more oxygen. Now I am sick also and Jordan is starting to get sick. We are hoping and praying that we will all soon get over this.