Home on Tuesday

We were able to bring Cameron home on Tuesday.  He isn't totally over his cold yet, but it is slowly getting better.  

Colds and Hospital

Cameron got a bad cold and cough on Wednesday after we got home from Indiana.  We went to Cleveland in the morning for blood work and his cold started after that.  By Thursday he was very congested and getting puffy with extra fluid. We came back to Cleveland on Friday and Cameron hot admitted to the hospital.  By then I got the cold too.  They gave him IV diuretics and gave him a little extra oxygen support.  So Jordan and I and Cameron got to celebrate Jordan's first Fathers Day and our 5th wedding anniversary in Cleveland. 

Cameron is doing a lot better, but still pretty stuffed up. I'm not sure yet what the plan is and when we will be able to go home.  

Two Funerals in One Week

On Monday of last week, my uncle Ed (my mom's brother) passed away unexpectedly of a heart attack.  We really wanted to be able to go to the funeral to be with all the family.  They live in Missouri, a 12 hour drive.  We didn't know if we would be able to take Cameron on that long of a trip.  Cameron had doctors appointments  all day on Wednesday and we asked them about taking Cameron on such a long trip.  They were really happy with how he was doing and planned where we should take Cameron if there was an emergency on the trip.  Cameron had gained over a pound in a week, so they adjusted his feed so he wouldn't gain as much so fast.  Two van loads left at 9 pm on Wednesday night.  With Cameron and   Josie two kids, we thought it would be easier to travel at night so the kids could sleep.  The trip went good and we enjoyed being with all the family on Thursday.  On Thursday, at 6 pm we got word that Zach, my brother-in-law, passed away.  One of my sisters and a brother went to be with Jenny and Zach instead of going to Missouri.  We were all praying he could go Home, he was so weary.  At 6pm, Zach took his last breath.  He went peacefully to his Heavenly home.  Jenny, Jacob, and Julie were with him when he took his last breath.  

After the funeral on Friday, we left for Indiana for Zach's funeral. We got there at 2 in the morning and then the viewing was on Saturday.  We were all exhausted emotionally and physically.  On Sunday, the funeral was nice but really hard.  Cameron was doing really good through all our traveling and being away from home. We were so thankful.  Jordan and some others went home on Sunday,  but Josie and I stayed till yesterday with our kids.  We are glad to be home after being gone almost a week.  

Summer Haircut

Cameron got out of the hospital last Friday and is doing good.  His sodium is going to need monitored closely, especially with the hot weather.  It has been a busy week. We helped Javan and Josie move on Monday and Tuesday we had a doctor appointment in Cleveland.  Today Cameron got his hair cut. It is a lot shorter then what we are used to, but we want him to stay cool and all his hair was definitely hot.

Hospital Stay

Cameron was admitted to the PICU in Cleveland on Tuesday for high sodium.  They had changed some medications and sodium the week before and for some reason his sodium level spiked.  His sodium was 164 and 130s is normal. They don't like it to drop too fast, but the next morning it had dropped to 139.  He was acting funny yesterday, but seemed good enough to move to the floor. Right before he was going to be moved he had a scary episode.  He was resting in bed and all of a sudden he became stiff and unresponsive and his heart rate started dropping.  He turned purple and they had to bag him to get him to start breathing.  The doctors thought it was a seizure.  He wast acting normal after it happened and they gave him something to calm him.  They put EEG leads on his head too monitor for seizures, but so far they haven't seen anything they believe to be seizures.  He had done something similar the last time he was admitted to high sodium but it wasn't near as severe as this.  I was really scared since he wasn't acting normal and had no idea what would happen,  I had to try to get the worried thoughts out of my  mind an trust God had a plan. My mom and Jordan came later to be with us and soon after Jordan got here, Cameron smiled at him and started acting more normal.  We were so thankful.

My mom stayed the night in Cameron's room, while Jordan and I got a hotel room and got some sleep.  Cameron had a really good night and has been very happy and acting like himself.  We are waiting for some more results, but he might get moved to step down later today. 

Fun at Home!

We have been doing good, just really busy.  We are still so behind on paperwork and stuff at home from being in the hospital since last July.  

Cameron loves to be at home and is still trying to decide if he likes being outside.  He likes being with his cousins, as long as their not too loud.  Instead of talking in a normal voice, cousin Addy loves to yell if she is happy, sad, excited or mad.  She   has scared him and made him cry more than once. Lol.  Cameron loves to look at books and chew on anything he can get into his mouth.  He is now getting physical therapy once a week and the therapist comes right to our house.  Next week is busy with two days in Cleveland.  Tuesday we go to the feeding clinic and Friday we go to see other specialists.  

Cameron woke up with a fever this morning and hasn't been feeling very good.  Hopefully it is nothing serious and he will soon feel better.

Home!

We are so thankful to be home again. We got home yesterday late afternoon. Cameron is doing a lot better and is back to his normal self. He is so happy to be home and is smiling all the time. We have been spending some time outside. I'm so glad the weather is finally warm enough to take Cameron outside. Thanks for the prayers.