Thankful to be Home

We got home yesterday and we are so glad to be home. Cameron is doing good and was excited to be playing with his toys and looking at books. 

Good News! So Thankful!

Cameron's x-ray this morning looked a lot better.  The extra oral diuretics over night did a good job getting rid of a lot of the extra fluid around the lungs. It was decided to continue with the oral diuretics and that he would not have to get a central line put in.  We were so happy that he didn't need the line or need to be put asleep.  He had an echo and the echo showed his heart was functions were about the same as the last echo, which is good.  By afternoon he was doing so much better.  He started eating by mouth for me today after refusing to eat for over a week.  All that extra fluid in his body was keeping him from wanting to eat. We are so happy he drank from his sippy cup and ate baby food.  He was happy too!  

Cameron will get another x-ray done in the morning and depending on how things go, we hope to go home tomorrow.  We will see,  God has a plan and all in his time.  My mom was with us today and yesterday and Jordan came for a visit tonight.  We were so glad to see him.  Cameron cried when he got here because Jordan couldn't hold him fast enough.  He wanting Jordan right when he saw him.  As you can see he snuggled with Jordan and gave him lots of kisses! 

In the Hospital

Cameron had been doing good and was able to get his feeding tube replaced last Tuesday.  The procedure went really good and was a lot simpler than we thought it would be.  Since that he hasn't wanted to eat anything by mouth.  I'm not sure why, but he is getting lots of new teeth now and plus has been fighting a cold still.

Today we had a scheduled apt in Cleveland with cardiology, but yesterday he started getting really puffy eyes all of a sudden.  This morning his one eye was so puffy it was almost shut.  I was pretty sure we would have to stay in the hospital so i packed clothes.  

Cameron got an x-ray and labs when we got here today. The x-ray showed that he has a lot of extra fluid around the lungs and that alone was enough to keep him in the hospital.  He needs IV diuretics to get rid of all that fluid, but after many many pokes he still has no IVs.  We got moved to PICU and the plan is to put him under tomorrow and put in a central line.  While he is asleep they plan on doing an echo and depending on how things look and how he is doing, they might put in a chest tube to get rid of the fluid faster.  We are not sure yet when the procedure will be tomorrow.  

Thanks for your prayers.

Too Long

Sorry it has been so long since I updated.  We have been doing good.  Cameron hasn't stayed in the hospital since June and except for some colds has been healthy. He is getting so big.  He is more active and I don't think it will be long till he is crawling.  He has four teeth with more on the way.  Since he started getting teeth, he likes to show them off and give us big toothy grins.  We are having some trouble with his feeding tube staying in place and it needs be changed as soon as the procedure can be scheduled.  

We have been busy and it is hard to believe today is the last day of September. We are so thankful that Cameron has been doing good and that he has stayed out of the hospital so long.

It's Official

Yesterday, we finalized the adoption in court and Cameron is officially Cameron Benjamin Stoller.  We are so thankful to have the adoption finalized and for Cameron to legally have our last name.  

We had a good weekend visiting Jenny and her kids in Indiana and spending Saturday at the Gateway Woods auction. Cameron is still not totally over his cold, but his body seems to be doing good fighting so far at home.

First Birthday!

Cameron had his first birthday on July 27th.  We have had different family gatherings/birthday parties. My sister, Jenny, and her kids were here a week ago and we were so glad to be able to have them here.

 It is hard to believe that Cameron is one.  This past year has seemed so long, but I still can't believe Cameron is one.  He is growing and changing.  He is now talking even more and making different sounds.  He also just started rolling over and rolls all over the place.  July is the first month of Cameron's life that he hasn't stayed in the hospital at all.  He has been fighting a cold since last Friday and we are hoping and praying he gets over it soon without going in the hospital.  Just last week we got Cameron into a feeding clinic and we are starting to work with him in eating and drinking.  He is doing good and likes both the eat and drink, small amounts.  This is an exciting and big step for him!  

We are so thankful and blessed to have Cameron!  

So Big

I know it has been a while since I last updates our blog.  Cameron has been doing really good and is getting so big. He is now 21 pounds and will have his first birthday next week.  It is hard to believe he is going to be one, but at the same time last July seems like so long ago.  He is starting to show some interest in eating, so soon we hope to go to a feeding clinic and get some help for him with eating.  Cameron started to roll over and is talking more and more.  He rolls over on his tummy and then doesn't like being there and fusses.  He hasn't figured out how to roll back over to his back.  We are working with him on sitting up and he is doing really good with help.  We love him so very much and are so thankful how good he is doing.