Summer Haircut

Cameron got out of the hospital last Friday and is doing good.  His sodium is going to need monitored closely, especially with the hot weather.  It has been a busy week. We helped Javan and Josie move on Monday and Tuesday we had a doctor appointment in Cleveland.  Today Cameron got his hair cut. It is a lot shorter then what we are used to, but we want him to stay cool and all his hair was definitely hot.

Hospital Stay

Cameron was admitted to the PICU in Cleveland on Tuesday for high sodium.  They had changed some medications and sodium the week before and for some reason his sodium level spiked.  His sodium was 164 and 130s is normal. They don't like it to drop too fast, but the next morning it had dropped to 139.  He was acting funny yesterday, but seemed good enough to move to the floor. Right before he was going to be moved he had a scary episode.  He was resting in bed and all of a sudden he became stiff and unresponsive and his heart rate started dropping.  He turned purple and they had to bag him to get him to start breathing.  The doctors thought it was a seizure.  He wast acting normal after it happened and they gave him something to calm him.  They put EEG leads on his head too monitor for seizures, but so far they haven't seen anything they believe to be seizures.  He had done something similar the last time he was admitted to high sodium but it wasn't near as severe as this.  I was really scared since he wasn't acting normal and had no idea what would happen,  I had to try to get the worried thoughts out of my  mind an trust God had a plan. My mom and Jordan came later to be with us and soon after Jordan got here, Cameron smiled at him and started acting more normal.  We were so thankful.

My mom stayed the night in Cameron's room, while Jordan and I got a hotel room and got some sleep.  Cameron had a really good night and has been very happy and acting like himself.  We are waiting for some more results, but he might get moved to step down later today. 

Fun at Home!

We have been doing good, just really busy.  We are still so behind on paperwork and stuff at home from being in the hospital since last July.  

Cameron loves to be at home and is still trying to decide if he likes being outside.  He likes being with his cousins, as long as their not too loud.  Instead of talking in a normal voice, cousin Addy loves to yell if she is happy, sad, excited or mad.  She   has scared him and made him cry more than once. Lol.  Cameron loves to look at books and chew on anything he can get into his mouth.  He is now getting physical therapy once a week and the therapist comes right to our house.  Next week is busy with two days in Cleveland.  Tuesday we go to the feeding clinic and Friday we go to see other specialists.  

Cameron woke up with a fever this morning and hasn't been feeling very good.  Hopefully it is nothing serious and he will soon feel better.

Home!

We are so thankful to be home again. We got home yesterday late afternoon. Cameron is doing a lot better and is back to his normal self. He is so happy to be home and is smiling all the time. We have been spending some time outside. I'm so glad the weather is finally warm enough to take Cameron outside. Thanks for the prayers.