Count Down!

We are counting down the days till we can take Cameron home. A week from today, they plan on taking Cameron's pic line out and finishing the last couple days of antibiotics with an IV. If all goes as planned, we hope to go home Monday, October 1st!

Cameron has been doing good. The doctors are very happy with how he is doing and wish they could send us home sooner. Cameron is still having a hard time with feeds. He doesn't like drinking from a bottle very much. They have changed him from donor breast milk to the formula, so he is trying to get used to a different taste now and that doesn't help. What he doesn't drink goes through his NG feeding tube. Cameron also has a hard time keeping his food down, but he is still gaining weight. He is now over 9 pounds.

Yesterday was the first time I was able to take Cameron on a short walk around the hospital!

Keep On, Keeping On

Cameron has been doing good. We are very thankful. Sunday was the last day that he got methadone for withdrawal symptoms and so far he has been doing pretty good and hasn't needed any more. Cameron is still working at drinking from a bottle. It is a very slow process, he would much rather have it put down his NG feeding tube. I just need to keep being patient and keep working with him. Cameron is now off oxygen, which has been a slow process to get him here. We were so glad to see that go. The last day of Cameron's antibiotics is on September 29th. We hope to go home a couple days after that if all goes good. We can't wait to take our son home!

Last Friday was a big day for us. We have been waiting to sign adoption placement papers ever since Cameron was born. On Friday, we signed papers and we finally have legal custody of Cameron! Ohio adoptions take 6 months to finalize.

The doctors and nurses are starting to teach us how to care for Cameron at home. They want to get us all ready so when the antibiotics are done, we are all ready to go home. There is a check list of things we need to know and be able to do, so we can go home. We are so ready to be home.

First Time for Bottle!

 

 

Yesterday was the first time that Cameron got fed with a bottle!  I loved being able to finally feed him.  He liked it, but all the hard work wore him out.  He was soon sound asleep.

Step Down Unit!

I know it is past due for an update. I have been a busy mom. Monday afternoon, Cameron got moved out of the PICU to the step down unit! We were so excited, but also nervous about what it would be like. We knew the PICU had the best care and knew that Cameron wouldn't get as much one on one in the step down. Moving brought good change and more progress. We can now help with most of Cameron's care and can get him out of bed when we want to and without the nurses help. I love being able to actually being able to take care of him. I am planning on staying with him a lot at night or at least part of the night. Cameron shares a room right now with another baby, which makes things hard. Even if Cameron is sleeping, I can't always sleep because the other baby is crying. Yesterday, Cameron started on bolus feeds, which is a feed given over 30 min. Instead of having a small amount of milk going in his tube all the time, he gets a bolus feed every three hours. I also got to feed him with a bottle for the first time! He did really good and drank 8 ml. Only a small amount, but it wore him since it was the first time and he needs to learn how to drink. With the rest of the milk, they do it as a bolus feed. I have been trying to feed him a bottle every other feed and each feed he has drank more through the bottle. At his 4am feed, he drank 20ml.

We are so thankful for all the progress Cameron is making. He still has a ways to go and still has about three and a half weeks on his antibiotics.

Daddy and Cameron

Cameron has been doing really good. He is now getting tube fed again, which makes him so much happier. He is back on full feeds of 20ml/hr and the TPN(IV nutrition) is turned off. Cameron is also on very low oxygen. He was going to get moved to the step down unit today, but throughout the night and early this morning he was having withdraw symptoms from morphine again. They want to keep him in PICU yet to try to see how he does today and figure out the best way to help him. He had been having a good day. He loves being held.