We are so thankful to be home. The first two nights were rough for us, Cameron kept waking up and gagging. Last night was a lot better and i got more than 2-3 hours of sleep. Yesterday, we went to Cleveland for a doctor apt and for Cameron to get his blood drawn. His sodium level was low before we brought him home, so he gets sodium now and they needed to make sure the level was coming up. The appointment went good and the blood test showed Cameron's sodium did go up. Not where it should be, but it will hopefully continue to go up. Next Thursday we will go back to Cleveland to see Cameron's cardiologist and nutritionist. We also have a home care nurse coming to check on Cameron once a week.
Cameron loves to lay on the floor and play with his toys. He is doing really good, probably the best he every has been.